Mexico here we come!

26 Sep

Thank you all for your posts!  After much thought and consideration we’ve made the decision to do the Leukocyte Immune Therapy in Nogales, Mexico.  It sounded really scary at first, but the more I’ve learned the more I am optimistic that it is exactly what we need right now and there is no reason to be scared.

Since my last post I’ve met several people who have either done LIT and had success or know others who have.  In fact when I raised my concern at my last Resolve support group that is very familiar with immunology treatments they thought it sounded quite normal and common.  I was concerned that it was not FDA approved, but as they pointed out, neither are a lot of treatments that are used for infertility like intralipids and IVIG.  In fact even the Femara I used to get pregnant on my last three pregnancies says right on the bottle that it should not be used for fertility.  It’s technically only approved for treating breast cancer.   Bottom line is I don’t need to get all bent over the FDA approval.

I was also weirded out because we had to go to another country, but I’ve since found that there are clinics all over the world that do it including in Canada, Latin America, Europe and Asia.  I think I’d prefer to go to Canada and make it into a long weekend, but to be treated in Canada you need to be a Canadian citizen and covered under their national health insurance.  We are sticking with the clinic in Mexico because they accept patients from around the world and they work directly with our clinic so it is logistically easiest.

We now know three couples who did the same treatment in Mexico and are either pregnant or already had children as a result.   We’ll see what happens, but I am feeling quite hopeful that that this will help us more than IVF or IVF with PGD ever could.  Given our last two pregnancies that were tested came back normal,  my gut tells me it is not a chromosomal issue and the immune system issues really make a lot of sense.  We may not even need IVF (fingers crossed).

Based on the comments I feel like a pioneer stepping out into new territory.  I’ve gone a full 360 from thinking there was no hope to now I can’t wait to go and see my results!

On a funny note, did anyone see Weekend Update on Saturday Night Live last weekend.  (To jump to the joke go to 34:50).  Seth Meyers hit the nail on the head in a funny way with Facebook.

“On Thursday Facebook announced a new change to its interface called Timeline which will let users share pictures and videos in real time.  Because we’ve all been thinking Come at me faster other people’s ultrasounds!

The status text reads “Hey, look at my baby.  OMG!  He looks just like my Dad.  I’m so excited!”.  Hilarious.

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11 Responses to “Mexico here we come!”

  1. bodegabliss September 26, 2011 at 2:35 pm #

    Oh my gosh, I think this is really great! I’m really interested to see how it goes and can’t wait to learn more about it. I’m so glad you made this decision! When are you going?

    • starfishkittydreams September 26, 2011 at 3:52 pm #

      We are shooting for October 8th. We are waiting for our blood tests to come back to confirm that we don’t have any infectious diseases (like HPV, etc.). We need to go twice with three weeks in between. After that we’ll test my numbers to see if they’ve increased. For a healthy pregnancy they recommend I have 50 or over and I am currently at 19. I will definitely let you know how it goes. I have lots of information in my email about it as well that I can forward if you are interested. Although it is anecdotal several couples I’ve met swear this is what enabled them to get from failed IVFs or repeat loss to having a family.

      • bodegabliss September 30, 2011 at 12:09 pm #

        What levels are you talking about that you’re at 19, but they need to be at 50?

  2. Misfit Mrs. September 26, 2011 at 6:33 pm #

    Very exciting! I am tuning in at the right time. After putting down all the off label use of drugs you already take, it makes a case for trying something new.

    I will round up soon to get the details. It will be very good to do something new.

    • starfishkittydreams September 27, 2011 at 12:13 am #

      I feel like a pioneer! We’ll see if/how it helps. If you decide to do immunology testing and they recommend LIT then I can definitely fill you in on all the details. Even though the clinic is in Los Gatos they work primarily with remote patients, so it would not be an issue to be in Philly if you decide to go for the testing.

  3. Hope September 26, 2011 at 8:42 pm #

    I am just amazed at how optimistic and hopeful you sound right now! I really hope that this ends up being your solution. I am impressed with how you delved into the matter and researched it until you felt comfortable with it. And I agree with Misfit Mrs. about how it’s not the only off label drug used for fertility and pregnancy. That is a really good point.

    • starfishkittydreams September 27, 2011 at 12:16 am #

      I feel REALLY lucky for my local IRL support group which had multiple couples who had done it and were willing to share their experiences. It seems rare in the online world.

  4. Molly September 27, 2011 at 5:39 am #

    I will be following this treatment to see how it goes. Sounds really hopeful 🙂

    I always love Seth Meyers & weekend update. But, my favorite skit from this episode was the fake commercial for “red flag”

  5. Mo September 27, 2011 at 2:19 pm #

    I totally wanted to post that SNL clip too!
    I watched it three times in a row. Yay SNL!
    And yay Mexico! I hope this treatment is a raging success!
    xoxo

  6. Amy Lynn September 30, 2011 at 8:54 am #

    It sounds like you have thought it all through and I agree lots of IF treatments are not FDA approved. I did intralipid treatments so I get it. I am excited for you and look forward to following your treatment in Mexico

  7. jjiraffe September 30, 2011 at 11:03 pm #

    I’m so excited for you that you have chosen this path! I can’t wait to hear more about your journey…

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